Good news from Tuesday’s Bone Marrow Biopsy

The warning labels on the stuff I take don’t exactly reduce anxiety! How bad off must one be to need something this scary? The reality is that it’s pretty benign stuff.

Reading the warning label on the medicine I take, is it any wonder someone gets a bit apprehensive about having Essential Thrombocythemia? But there’s some really good news.

I had my first bone marrow biopsy on Tuesday, something I wasn’t looking forward to not just for the procedure itself, but also what it might tell me. In a nutshell, those of us with bone marrow cancers essentially have a fuse, and what we don’t know, without a bone marrow biopsy, is if that fuse has been lit, and if it has, how long it might burn. Kind of scary stuff.

The procedure isn’t fun, trying to punch a needle through bone to extract material from the inside. But I got through it and actually rode my bike back to the shop and kept working the rest of the day. And then, Friday, I got an email saying I had a message from my doctor. Wow, wasn’t expecting anything for at least another week. So I go to Kaiser’s website without any of the fear I expected (I’d already intellectualized/rationalized just about all possibilities) and get some really good news. Everything is “normal” except for the minor changes associated with my condition. There is no evidence of progression to something much worse.

I’ve still got some annoying symptoms that will be with me forever; itching (controlled with Allegra), a bit lower energy levels, and a strange sort of dull pain that comes from the inside of my hip bones. But my platelets (which my disease messes with) are under control so I’m basically risk-free and without restrictions. Like I said, very good news.

The specifics, from the doctor’s email-

– There is no Myelofibrosis.
– Reticulin (ranges from 1-3) level at 0-1 (which is very minimal if any, and not unexpected in this condition).

It is SO good to be back on the regular routine again!!!

Sunday I had a very short ride with Kevin due to, well, I don’t even remember at this point. But we didn’t do the usual ride to the coast, just a brief not-even-40-miler in the foothills. Tuesday’s ride was severely shortened because I had an early appointment to have some of my bone marrow sucked out, and skipped my normal ride home because the doc didn’t want me to exercise “strenuously” for 24 hours. Yesterday I was back to the regular ride to & from work, and felt pretty good riding home last night, chasing my son up the hill.

And today… today finally felt like normal times again. The regular Thursday morning ride, with both Kevins, heading up through Kings. Just a few degrees cooler this morning, which made a bigger difference in my (in)ability to breathe than I expected. But it was a good effort and, like Tuesday, I found myself able to carry on a conversation heading uphill. If I’d been trying to get a decent time, sure, that wouldn’t have been possible, but this winter the theme has been “ride casual.”

We’ve still got three stoplights slowing down our times; the first on Skyline near Bear Gulch, the second on Skyline between West Old LaHonda and Sky Londa, and the final affront to a speedy ride comes about halfway down 84, heading into Woodside. None of these seem to come at opportune times, meaning a welcome chance to take a short break. They’re just annoying, and leave you wondering just how long before they finish our local road repairs. Maybe they’re waiting for it to start raining again.